Genetic Privacy: An Evaluation Of The Ethical And Legal Landscape, 1st Edition

  • Published By: Imperial College Press
  • ISBN-10: 1783263067
  • ISBN-13: 9781783263066
  • DDC: 174.2
  • Grade Level Range: College Freshman - College Senior
  • 412 Pages | eBook
  • Original Copyright 2013 | Published/Released January 2015
  • This publication's content originally published in print form: 2013

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The compilation presented in this volume represents continuing discussions on the theme of privacy in the context of genetic information. It is intended to present a wide range of expert opinion in which the notion of privacy is examined from many perspectives, in different contexts and imperatives, and in different societies, with the hope of advancing an understanding of privacy through the examination and critique of some of its evolving component concepts such as notions of what constitute the personal, the context of privacy, the significance and impact of the relational interests of others who may share the same genetic inheritance, and mechanisms for the protection of privacy (as well as of their limitations), among others. More specifically, the discussions in this volume encourages us to think broadly about privacy, as encompassing values that are entailed in the sociality of context and of relations, and also as freedom from illegitimate and excessive surveillance.

Table of Contents

Front Cover.
Half Title Page.
Title Page.
Copyright Page.
Editors' Note and Acknowledgements.
Notes on Contributors.
1: The Notion of Genetic Privacy.
2: Can Data Protection Secure Personal Privacy?.
3: Navigating the Privacy Complex of Self, Other and Relationality.
4: Privacy and Biomedical Research: A Role-based Approach.
5: Socio-political Discourses on Genetic Privacy in Japan.
6: Genetic Privacy: A Challenge to Genetic Testing in China.
7: Don't Ask, Don't Tell: Exploring the Limits of Genetic Privacy in Singapore.
8: Privacy, Rights and Biomedical Data Collections.
9: Individual Right vs. Public Interest: The Role of the Islamic Religious Council of Singapore in Bioethics Consultation on Genetic Privacy.
10: What — If Anything — Is Special about “Genetic Privacy”?.
11: Genetic Privacy in the United States: Genetic Exceptionalism, GINA, and the Future of Genetic Testing.
12: The Regulatory Framework for Protection of Genetic Privacy in Australia.
13: Privacy Matters in Nicotine Addiction.
14: Human Genomics and Privacy.